Today my little boy turns 2. Jeremiah was born with Spina Bifida. Part of his spinal cord did not close and was outside his back. (I have a picture of his cyst before surgery if you are curious, but it is pretty graphic, so I won't post it here). Jeremiah was born in the "pike position" with his legs up by his head, and he could not lower them at all. Our neurosurgeon told us that he would probably never walk. He was in the NICU for 2 weeks. He had his initial closure surgery to remove the cyst on the day he was born. Then three days later, he had a surgery to place a shunt in his brain because he also has hydrocephalus, excess fluid in the brain. He had another surgery at three months because his shunt stopped working. He went through a series of casts. The casts lowered his legs, and he can now bend his knees. He has no feeling in his feet, but he is learning to take steps with a walker.
A good friend made a video of Jeremiah's progress and I thought I'd post it here. Thanks, Claire!
We have been so blessed by Jeremiah. He is a happy little guy! He has a tender heart, a sweet smile, and an infectious laugh!
Happy Birthday, Jeremiah! We love you!
No comments:
Post a Comment